Betsy Hopson, MSHA
Disclosures: Nothing to disclose

Betsy Hopson

Children’s of Alabama & University of Alabama at Birmingham

 

 

Betsy Hopson, MSHA

Home Address: 348 Eureka Rd. Lincoln, AL 35096

Cell: 205-410-8830

 

PROGRAM DIRECTOR - Children’s of Alabama

DATA PROCESSING SUPERVISOR- University of Alabama at Birmingham

Department: Neurosurgery, Urology

Children's of Alabama, 1600 7th Avenue South, Lowder 400, Birmingham, Alabama, 35233

Phone: 205-638-5281

Fax: 205-638-6551

Email: betsy.hopson@childrensal.org

 

EDUCATION

 

Troy University, Troy, Alabama

Master of Science in Healthcare Administration

Summa Cum Laude

 

Huntingdon College, Montgomery, Alabama

Bachelor of Science, Magna Cum Laude

                    Major: Business, Healthcare Management

 

WORK EXPERIENCE

 

Children’s of Alabama, Specialty Care Services

              Program Director, 2006-current

 

University of Alabama at Birmingham, Department of Urology

              Data Processing Supervisor, 2008-present

 

Children’s Healthcare of Atlanta, AFLAC Cancer and Bleeding Disorder Center

              Program Coordinator, 2002-2006

 

Advanced Dermatology, Private Practice

             Office and Billing Manager, 2000-2002

 

Urology Associates, Private Practice

              Billing Coordinator, 1996-1998

 

RESEARCH EXPERIENCE- ONGOING

 

Title: Body Composition and Energy Expenditure in Youth with Spina Bifida

PI: Michele Polfuss

Award number: R01HD096085

Sponsor: NIH / NICHD

Project dates: 7/1/19 – 5/31/24
Year 1 dates: 7/1/19 – 5/31/20 (all following years will be 6/1 – 5/31)

Total anticipated award amount: $3,639,536

First year direct costs (for Other Support documents): $628,529

Project Narrative (2-3 sentence summary of goals of project from the application, can also be used on Other Support documents): The outcomes of this study will provide a method to accurately measure body fat in the clinical environment and information on energy expenditure in youth with spina bifida. This population is at a higher risk of obesity than the general population. These findings will provide a method to screen and support prevention and treatment of obesity through the ability to accurately identify the youth’s weight status and to recommend daily caloric needs for this high-risk population.

Kaul Pediatric Research Institute                                                                                                                July 2019-

              Quality Improvement of Bowel Outcome Data for Patients with Spina Bifida

Principal Investigator

 

Allergan 191622-120  PI DBJoseph                                                                                                  06/ 2013-2018

              BOTOX® in the Treatment of Urinary Incontinence Due to Neurogenic Detrusor Overactivity in Patients               8 to 17 Years of Age  $95,130 

Project Coordinator

 

CDC- RFA-DD-14-02; PI DBJoseph                                                                                                                09/30/14-

              The UAB Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida,               Component B.Center for Disease Control and Prevention  $350,000 

Project Coordinator

 

CDC- RFA-DD-14-02; PI DBJoseph                                                                                                                09/30/14-

              The UAB Research Approaches to Improve the Care and Outcomes of People Living with Spina Bifida,               Component C, Urologic Newborn Protocol.Center for Disease Control and Prevention  $150,000 

Project Coordinator

 

Kaul Pediatric Research Institute                                                                                                                January 2015-2018

              Improving the Transition to Adult Care for Patients with Spina Bifida

Project Coordinator

 

CDC- 5IU01DD000773-02  PI DBJoseph                                                                                                  9/30/11-6/29/2014

              The UAB Spina Bifida Registry Longitudinal Data Collection and Evaluation Study Center for               Disease Control and Prevention  $172,498              

Project Coordinator

 

CDC- 1U01DD000391-01; 1U01DD000391-02; 1U01DD000391-03 PI DBJoseph                            2008-2011

              The UAB Spina Bifida Patient Registry Demonstration Project Center for Disease Control and               Prevention  $120,000 

Project Coordinator

 

Allergan  191622-12  PI DBJoseph                                                                                                  06/2013-2018

              Long-term Extension Study of BOTOX® in the Treatment of Urinary Incontinence Due to               Neurogenic Detrusor Overactivity in Patients 8 to 17 Years of Age  1  $160,770 

Project Coordinator

 

 

 

 

 

 

SBA-  PI  DBJoseph                                                                                                                                            2011-2012                                          Beta Test Site for the Spina Bifida Electronic Medical Record $75,000

Project Coordinator

 

AWARDS/HONORS

Outstanding Spina Bifida Champion, 2011

SBA Partnership Collaboration, 2011

Children’s of Alabama Role Model, 2006-2019

 

COUNCILS AND COMMITTEES

President, Spina Bifida Association of Alabama Chapter, 2009 – 2019

Vice-President, Spina Bifida Association of Alabama Chapter, 2006-2009

Vice-President, Parent Teacher Association, Lincoln Elementary School, 2013-2016

Chair, Electronic Medical Record Committee, CDC, 2007-current

Committee Member, National Patient Registry Coordinating Committee, CDC, 2007-present

Committee Member, Spina Bifida Association, Field Relations Committee, 2009-present

Committee Member, Consumer Research Advisory Committee, Lakeshore Foundation, 2014

Board Chair, Lincoln United Methodist Church, Lincoln, Alabama, 2013

Volunteer, Softball Coach, Lincoln Parks and Recreation 2008-2016

Volunteer, Camp VIP, Spina Bifida Association of Alabama, 2012-2013

Professional Memberships

American College of Healthcare Executives

Spina Bifida Association of America

Spina Bifida Association of Alabama

AREAS OF EXPERTISE

Strategic Planning

Program Management

Interdisciplinary Team Building

Care Coordination

Innovative/Creative Planning

Transition Services

Medical Complexity

National Patient Registries

 

MAJOR RESEARCH INTERESTS

Interdisciplinary care models for patients with medical complexity.

Transition planning for children with chronic health conditions.

The successful use of national registries to ascertain data about specific populations. 

Population specific outcome projects.

Global Folic Acid Fortification.

 

PUBLISHED ABSTRACTS

 

Boddiford C, Arynchyna AA, Hopson BD, Shannon CN, Blount JP. Long Term Follow Up of Tethered Spinal Cord Following Closure of Myelomeningocele. 2012 American Epilepsy Society. Presented November 2012.

 

Blount JP, Arynchyna AA, Hopson BD Shannon CN, Oakes WJ, Wellons JC. Evaluating the MOMS Results: a retrospective single institution comparison study. 2012 Peyton Society Summer Meeting. Presented 2012.

 

Davis D, Arynchyna AA, Hopson BD Velsesky S, Bey AK, Shannon CN. Change in Mobility in a Post-Pubertal Cohort with Spina Bifida. 2012 2nd World Congress on Spina Bifida. Presented March 2012. Presented March 2012.

 

 

PRESENTED ABSTRACTS

 

From Transition Challenges to Successes: Establishing a Spina Bifida Adult Care Clinic

Betsy Hopson, Jeffrey P. Blount, Chevis N Shannon, Ralee Bishop

 

Beta Testing of a Spina Bifida Electronic Medical Record (EMR)

Authors:  Smith, Hopson, Clayton, Thibadeau, Ward, Walker

 

Factors Associated with Ambulatory Status in Children with Myelomeningocele

A Bey, S Veselsky, B Hopson, C Shannon, M Conklin

 

Transitional Care in Neurosurgery: follow up from a 12 month experience

Jeffrey P. Blount MD, Betsy Hopson , Chevis N Shannon MBA, MPH, DrPH, Kristen Riley MD, Mahmehri Okor MD and Patrick Pritchard MD

 

Urinary continence in young adults: perceptions, reality, and limitations. 

David Joseph MD, Courtney Shepard MD, Hopson, BD.

 

Shunt insufficiency is valid concept in managing hydrocephalus in myelomeningocele

Jeffrey P. Blount, Chevis N Shannon, Betsy Hopson, Gavin T Reed

 

Hopson, B, Davis, D

Impact of Transition Services on Individuals with Spina Bifida

, 2nd  Annual Spina Bifida World Congress             

 

Arynchyna AA, Ditty BJ, Wellons JC, Blount JP, Hopson BD, Shannon CN. Comparing Mobility Outcomes of the MOMS to a Single Institutional Experience. 2012 2nd World Congress on Spina Bifida, Las Vegas.

 

Hopson, B Oral presentation at 3rd Annual Spina Bifida World Congress. Surveillance survey of family history in children with neural tube defects.

 

Hopson, B Oral presentation at 3rd Annual Spina Bifida World Congress. Lifetime Care Model.

 

Atchley TJ, Dangle PP, Hopson BD, Graham A, Arynchyna AA, Rocque BG, Joseph DB. Oral presentation at 3rd Annual Spina Bifida World Congress. Age of Transition to Self Clean Intermittent Catheterization in Patients with Spina Bifida. 

 

Dangle PP, Atchley TJ, Hopson BD, Graham A, Arynchyna AA, Rocque BG, Joseph DB. Oral presentation at 3rd Annual Spina Bifida World Congress. Factors Contributing to Stone Formation in Myelomeningocele in those with and without Bladder Augmentation.

 

Dangle PP, Atchley TJ, Hopson BD, Graham A, Arynchyna AA, Rocque BG, Joseph DB. Poster presentation at 3rd Annual Spina Bifida World Congress. Factors Associated with Transition from Caregiver to Self Clean Intermittent Catheterization in Spina Bifida.

 

 

Manuscripts

 

Hopson B, Alford EN, Zimmerman K, Blount JP, Rocque BG. Development of an evidence based individualized transition plan for spina bifida. Neurosurg Focus. 2019 Oct 1;47(4):E17. doi: 10.3171/2019.7.FOCUS19425. PMID: 31574471

Hopson B, Rocque BG, Joseph DB, Powell D, McLain ABJ, Davis RD, Wilson TS, Conklin MJ, Blount JP. The development of a lifetime care model in comprehensive spina bifida care. J Pediatr Rehabil Med. 2018;11(4):323-334. doi: 10.3233/PRM-180548. PMID: 30507593.

Alford EN, Hopson BD, Safyanov F, Arynchyna A, Bollo RJ, Hankinson TC, Rocque BG, Blount JP. Care management and contemporary challenges in spina bifida: a practice preference survey of the American Society of Pediatric Neurosurgeons. J Neurosurg Pediatr. 2019 Aug 30:1-10. doi: 10.3171/2019.5.PEDS18738. PMID: 31470398

 

Wingo BC, Yang D, Davis D, Padalabalanarayanan S, Hopson B, Thirumalai M, Rimmer JH. Lessons learned from a blended telephone/e-health platform for caregivers in promoting physical activity and nutrition in children with mobility disability. Disabil Health J. 2019 Aug 1:100826. doi: 10.1016/j.dhjo.2019.100826.  PMID:31416771

 

Zimmerman K, Williams M, Arynchyna A, Rocque BG, Blount JP, Graham A, Hopson B. Program Evaluation of Camp V.I.P.: Promoting self-confidence and Independence for Patients with Spina Bifida. J Pediatr Nurs. 2019 Jul - Aug;47:30-35. doi: 10.1016/j.pedn.2019.04.014. Epub 2019 Apr 23. PMID:31026678

Rocque BG, Hopson BD, Blount JP. Letter to the Editor. Fetal closure of myelomeningocele [published online ahead of print, 2019 Nov 29]. J Neurosurg Pediatr. 2019;1–3. doi:10.3171/2019.8.PEDS19498

Johnson K, Rocque B, Hopson B, Barnes K, Omoike OE, Wood D. The reliability and validity of a newly developed spina bifida-specific transition readiness assessment questionnaire: Transition readiness assessment questionnaire-supplement (TRAQ-SB) [published online ahead of print, 2019 Nov 8]. J Pediatr Rehabil Med. 2019;10.3233/PRM-180599. doi:10.3233/PRM-180599

Wood D, Rocque B, Hopson B, Barnes K, Johnson KR. Transition readiness assessment questionnaire spina bifida (TRAQ-SB) specific module and its association with clinical outcomes among youth and young adults with spina bifida [published online ahead of print, 2019 Nov 8]. J Pediatr Rehabil Med. 2019;10.3233/PRM-180595. doi:10.3233/PRM-180595

Kim I, Hopson B, Aban I, Rizk EB, Dias MS, Bowman R, Ackerman LL, Partington MD, Castillo H, Castillo J, Peterson PR, Blount JP, Rocque BG. Treated hydrocephalus in individuals with myelomeningocele in the National Spina Bifida Patient Registry.J Neurosurg Pediatr. 2018 Dec 1;22(6):646-651. doi: 10.3171/2018.5.PEDS18161.PMID: 30141753

Kim I, Hopson B, Aban I, Rizk EB, Dias MS, Bowman R, Ackerman LL, Partington MD, Castillo H, Castillo J, Peterson PR, Blount JP, Rocque BG. Decompression for Chiari malformation type II in individuals with myelomeningocele in the National Spina Bifida Patient Registry. J Neurosurg Pediatr. 2018 Dec 1;22(6):652-658. doi: 10.3171/2018.5.PEDS18160. PMID: 30141752

Estevez-Ordonez D, Davis MC, Hopson B; MSHA, Arynchyna A, Rocque BG, Fieggen G, Rosseau G, Oakley G; MSPM, Blount JP. Reducing inequities in preventable neural tube defects: the critical and underutilized role of neurosurgical advocacy for folate fortification. Neurosurg Focus. 2018 Oct;45(4):E20. doi: 10.3171/2018.7.FOCUS18231. PMID: 30269587

Conklin MJ, Hopson B, Arynchyna A, Atchley T, Trapp C, Rocque BG. Skin breakdown of the feet in patients with spina bifida: Analysis of risk factors. J Pediatr Rehabil Med. 2018;11(4):237-241. doi: 10.3233/PRM-170520. PMID: 30507590

Kuhn EN, Hopson B, Conklin MJ, Blount JP. Intradural spine surgery may not carry an increased risk of shunt revision compared with extradural spine surgery in pediatric patients with myelomeningocele. J Neurosurg Pediatr. 2018 Jan;21(1):11-15. doi: 10.3171/2017.7.PEDS17274. Epub 2017 Oct 20.

Davis M, Hopson B, Blount JP, Carroll R, Wilson T, Powell D, McLain A, Rocque BG. Predictors of permanent disability among adults with spinal dysraphism. J Neurosurg Spine. 2017 Aug;27(2):169-177. doi: 10.3171/2017.1.SPINE161044. Epub 2017 May 26. PMID: 28548634

Lupo PJ, Agopian AJ, Castillo H, Castillo J, Clayton GH, Dosa NP, Hopson B, Joseph DB, Rocque BG, Walker WO, Wiener JS, Mitchell LE. Genetic epidemiology of neural tube defects. J Pediatr Rehabil Med. 2017 Dec 11;10(3-4):189-194. doi: 10.3233/PRM-170456. PMID: 29125517

Shepard CL, Wang G, Hopson BD, Bunt EB, Assimos DG. Urinary tract stone development in patients with myelodysplasia subjected to augmentation cystoplasty. Rev Urol. 2017;19(1):11-15. PMID: 28522925

Laskay NMB, Arynchyna AA, McClugage SG 3rd, Hopson B, Shannon C, Ditty B, Wellons JC 3rd, Blount JP, Rocque BG. A comparison of the MOMS trial results to a contemporaneous, single-institution, postnatal closure cohort. Childs Nerv Syst. 2017 Apr;33(4):639-646. doi: 10.1007/s00381-016-3328-3. Epub 2016 Dec PMID: 28028598

Dupépé EB, Patel DM, Rocque BG, Hopson B, Arynchyna AA, Bishop ER, Blount JP. Surveillance survey of family history in children with neural tube defects. J Neurosurg Pediatr. 2017 Jun;19(6):690-695. doi: 10.3171/2016.12.PEDS1668. Epub 2017 Mar 31.

 

Dupepe EB, Hopson B, Johnston JM, Rozzelle CJ, Oakes WJ, Blount JP, Rocque BG. Rate of shunt revision as a function of age in a patients with shunted hydrocephalus due to myelomeningocele. Neurosurg Focus. 41(5) E6. Nov 2016. PMID: 27798984.

             

Patel DM, Rocque BG, Hopson B, Arynchyna AA, Bishop ER, Lozano D, Blount JP. Sleep-disordered breathing in myelomeningocele patients. J Neurosurg Peds. 16(1) 30-5. Epub April 2015. PMID: 25837889

Rocque BG, Bishop ER, Scogin MA, Hopson BD, Arynchyna AA, Boddiford CJ, Shannon CN, Blount JP. Assessing health-related quality of life in children with spina bifida. J Neurosurg Pediatr. 2015 Feb;15(2):144-9. doi: 10.3171/2014.10.PEDS1441. Epub 2014 Nov 21. PMID: 25415252.

 

ORAL PRESENTATIONS

 

Hopson, B.   Evidenced Based Protocols to Guide Transition from Pediatric to Adult Spina Bifida Care, Birmingham U.K. International Society of Pediatric Neurosurgeons, October 2019

 

Hopson, B, Lifespan Model of Care, Chicago, IL, June 2019

 

Hopson, B, Lifetime Care Model, Pediatric Grand Rounds, Birmingham, AL, January 2018.

 

Hopson, B, Transition to Adulthood for patients with Medical Complexity, Rare Disease Symposium, Birmingham, AL, March 2018.

 

Hopson, B, Transitioning to Adulthood an Interdisciplinary Model, Spina Bifida Education Day Des Moines Iowa, April 2018.

 

Hopson, B, Sexuality in Spina Bifida, Spina Bifida Education Day Des Moines Iowa, April 2018.

 

Hopson, B, Building a Healthcare Team, Spina Bifida Education Day Des Moines Iowa, April 2018.

 

Hopson, B, Promoting Clinic/Chapter Relationships, Phoenix, AR July 2018.

 

Hopson, B, Nontraditional Medicine, International Respite Conference, Huntsville, AL, October 2017.

 

Hopson, B, Transition Services for Medical Complexity, Pediatric Urology Nurse Conference, Dallas, TX September 2016.

 

Hopson, BD From Transition Challenges to Successes: Establishing a Spina Bifida Adult Care Clinic, Discover the Magic National Spina Bifida Conference, June 2014, Anaheim, CA

 

Hopson, BD Educating Members, Discover the Magic National Spina Bifida Conference, June 2014, Anaheim, CA. 

 

Hopson, BD, Transition Services in Alabama. Partners in Care Summit, Montgomery, AL April 2013. 

 

Hopson BD, Improving Adherence to Transition, Moving Beyond Pediatric Incontinence International Conference. June 2013, Toronto, Canada.

 

Hopson BD. Establishing an Adult Spina Bifida Clinic. 2012 2nd World Congress on Spina Bifida, Las Vegas.

 

 

Chapters

 

Spina Bifida Healthcare Guidelines, Care Coordination, Summer 2018

 

Spina Bifida Healthcare Guidelines, Neurosurgery, Summer 2018